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I have decided to blog about my journey with Lyme disease, first of all for my own record, but also so that maybe I can help someone else out there. Help them to not feel alone, and hopefully to one day give hope- because I plan to fight until I'm better, and when I am, I will have given you all the steps you need to get there too. And maybe some steps to NOT take, as I find what works and what doesn't. And I know what works for one may not work for all - it's all about starting with SOMETHING, and then go from there, adding things that may help and stopping things that clearly don't. Your body will tell you and guide you to what it needs. And ultimately, God designed our bodies to heal. We just need to rebuild our immune systems and provide it with what it needs to become strong again and fight the Lyme bacteria and co-infections.
After months of random symptoms, 4 specialists and no answers, I finally found out it was lyme disease causing my symptoms (which I had suspected from the beginning). Because of finances, the antibiotic route isn't an option, but from the research I've done sometimes using natural remedies are best anyway as Lyme can be very resistant to antibiotics. I will update this post as I go, so keep checking back, and I'd love your feedback and advice on things you may have found that have helped you on your journey to healing from Lyme Disease. Also, I've linked to the specific products I'm taking since some have asked, so if you're interested you can find them easily.
The symptoms that I have include muscle spasms, muscle twitching, ocular migraines, trouble sleeping, anxiety, knuckles locking/clicking at night (more mild during the day), joint pain especially in hip and hands, tendon pain, swollen lymph nodes, back gets numb/tingly, tremors, dizzy and low blood pressure.
The first supplements I started using were Monolaurin (from coconuts) and Biofibrin (enzymes). After reading a lot and researching, Monolaurin has a lot of antiviral, antimicrobial benefits, and specifically can kill lyme bacteria. The thing about Lyme though, is it likes to hide out in Biofilm where supplements you take cannot penetrate it to kill the lyme. That's where the Biofibrin comes in that has enzymes that will break up the biofilm so the Monolaurin can do it's job. I have worked my way up to 2 scoops a day of the Monolaurin, and am taking 1 a day of the Biofibrin right now. Even at 2 scoops of the little pellets, this container is lasting a LONG time. It sells for $49, but when you divide that out by how many months it lasts, it's definitely worth it. I do feel like these products are helping. I started out slow so did not have any herx reactions. The Mololaurin also helps with viruses including the flu, so it's nice to know this flu season I'm well protected!
Then I read about the amazing antimicrobial properties of raw garlic. So at least twice a day, I mince a garlic clove or two, let it sit for at least 10 minutes (this allows it time to produce allicin which is the beneficial compound), and then swallow it down with some almond milk. (It is VERY strong, I can't chew it). The first day I did this, I had a herx reaction, so I do think it will work for me with killing lyme. I backed off for a few days, and then started back slowly with just 1 clove a day. I have seen it in supplement form here, but am not sure if it would be as potent as eating the raw garlic or do as good of a job. I need to research this more, because a pill would be much easier than crushing garlic twice a day.
I also take Tumeric twice a day for the inflammation in my knuckles. I take Magnesium for the muscle spasms as well as calcium. I take Zinc for immune system boosting properties. At night, I take probiotics with Vitamin C and Echinacea. The link is to the brand I'm currently taking, but usually when I run out I will switch brands to try to get different strains.
I have just started using Oska Pulse (PEMF therapy)- look for a review coming soon!
Beyond supplements, there is much more I'm doing. I have drastically changed my diet and have completely eliminated gluten, dairy and as much sugar as possible. I'm trying to eat a lot more vegetables as well as lean meats and healthy fats.
I'm not able to exercise much right now because of the pain and joint issues but hoping as I start improving I can add that in. I do try to go for walks when I have the energy and pain levels are down.
Detox is a huge component of all this, because as you kill the bad bacteria, they release toxins that you must eliminate. Right now I try every day to get a detox bath with epsom salt after using a dry brush all over my body to stimulate lymphatic drainage. This also really helps with my muscle spasms and pain. I also take activated charcoal 2 hours away from vitamins, supplements and herbs because if you take it too close to them, it will absorb them as well as toxins and you will not get the benefits of what you're taking.
Parasites are a big issue for lots of people with Lyme and co-infections. I've recently discovered it is advised to treat this FIRST before trying to combat Lyme because it can hinder treatment. I found a parasite cleanse called Paraguard, and it is made from herbs that can be used alongside whatever other treatment you are using. Let me just say without getting too graphic- this stuff WORKS! I read that over 90% of people have parasites, so it's pretty much guaranteed you have them, but people with Lyme tend to have a higher parasitic load. The parasites can actually contain the Lyme bacteria, so that's why if you don't get rid of them, the Lyme may keep hanging on. I chose to use Paraguard because first of all it had some pretty impressive reviews, but also when researching the best herbs for a parasite cleanse, this one contains them all. It will also kill parasites at all the different life cycles, which is what you want. If you kill just the eggs, the adults will lay more. If you kill just the adults, the eggs will eventually hatch, etc. When you combine Fresh Green Black Walnut Hull, Fennel Seed, Quassia Wood, Pumpkin Seed, Wormwood Herb, Garlic Bulb, Clove Bud, Bayberry Root Bark, Fresh Garrya Herb, Peppermint Oil and Oregano Oil, you're coming at them from every possible angle to wipe them out.
I have just started adding in herbs from the Buhner Protocol and am excited to report I'm already noticing a decrease in symptoms. So far, I'm taking Cat's Claw and Japanese Knotweed. For information on the Buhner Protocol herbs, I've been referencing this site for amounts. I'm starting slow and just adding in 1 herb at a time to make sure I don't have any weird reactions, and if I do, I'll know exactly what's causing it. It's been encouraging, because I have actually not had any herx reactions but my symptoms are lessening somewhat. The spasms are not constant and the joint pain is not as severe. I am praying these herbs will be able to cure this nasty disease, because I have read a lot of people having success with them.
More to come soon, and I hope to pave the way for others coming behind me, this is an awful disease to have and I pray for all you other Lyme Disease sufferers - stay strong, we will beat this!
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